June 8

We are back in the hospital. Connor threw up again last night, and twice this morning between 4-6 am. Went to ED because he's so dehydrated now.
It turns out his kidneys are quite angry at him for the abuse he's put them through, and quite frankly they seem to be on strike. He got methotrexate on Thurs, and it was nowhere near "high dose", but 5 days later his level is way too high. He has mouth sores that go down the back of his throat (which is obviously aggravated by all the vomiting). So the nephrologist has consulted and will be monitoring him closely. Whatever we do now, needs to kind to his kidneys.
He's back on fluids, leucovorin, all the anti-nausea meds, anti-fungal, antibiotics, and morphine for the pain from the sores. They can't get blood drawn from his port anymore so they've added an additional iV to also administer all the meds as quickly as possible.
He's on the regular peds floor, but they've warned the ICU team that he's in back in the house, just in case. 
Thankfully no indication of fever this time, we are focused almost entirely on his kidneys at this point.
That said, the external drain is still draining, and (we believe) that most of what he's been throwing up is from the internal drain, because he certainly hasn't eaten enough to justify the volume he's getting rid of. He dropped another 3kg since Thursday (almost 7 lbs).
Likely here for several days as we treat his kidneys with kid gloves!!!

Comments

  1. KinlinFamilyJune 8, 2021 at 6:53 PM

    Oh no - so not the update I was hoping for! As you said, focus on the positive - no fever no ICU. Hope the kidneys “change their attitude” quickly and Connor is feeling soon - like now! 🍀 Lots of love, K/C/M/L 💕

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