June 29

The procedure went well, we think. The GI doctor didn't actually find any obvious leaks but placed a stent to try and direct flow to the stomach just in case. There was no access to the lower cyst so an external drain will still need to be placed. Hopefully it won't fill again.
It was a long procedure. Kirk and I walked into Morristown for a late lunch while we waited. A hot walk, 95F (~32C) plus humidity. Not as hot as the West Coast right now though!  Kirk stayed to spend the evening with Connor so he had a couple beers. This is him waiting for the procedure to be finished

Sound asleep!!
Once again I find myself saying, we should know more tomorrow!

Comments

  1. Nana PenJune 29, 2021 at 8:51 PM

    Well then, we shall wait to know more tomorrow! Hope you all get some well deserved rest! We West Coasters now understand the effects of continuous heat! Thank goodness you have AC! Love to all and hoping Connor is not nauseas tomorrow!

    ReplyDelete
  2. KinlinFamilyJune 30, 2021 at 7:17 AM

    🤞for tomorrow and answers. I hope everyone gets a good, well deserved night of sleep. 💕K/C/M/L

    ReplyDelete
  3. UnknownJune 30, 2021 at 8:26 AM

    Praying for healing. Our hearts and prayers

    ReplyDelete

Post a Comment

Popular posts from this blog

April 21

Connor was so happy to be in his own bed last night. The overnight hydration was generally without incident. Some beeping, but not enough to keep anyone, including Connor, awake. He's keeping his blood sugar under control, but not off the insulin yet. He's not eating much, the chemo is making him pretty nauseous this round. Likely because he doesn't have much else in him. Even the smoothie failed him this morning. Hoping to entice him with some food today, he gets his port de-accessed so he can go home and have the longest shower he wants, and grabbing an additional prescription for anti-nausea that he alternate with the zofran as needed. Such is the life of someone fighting cancer.
Read more

Sept 28th - UPDATED 4:00pm

11:30am Heard quickly from the oncologist.  He is reaching out to the pathologist to get the final results to narrow down the diagnosis.  It will lead the way for the rest of the tests. He's going to call back with an appointment time for tomorrow so we can meet to coordinate and ask questions. I'll add more when I know more! 4:00PM - Spoke with Dr. Gregory (oncologist).  They still don't have a full diagnosis, they want to redo the blood work, because the low white blood cell count has some Leukemia indicators and that will change some of the treatments going forward.  In addition, tomorrow, they will be doing a Bone Marrow test and a Spinal Tap.  He will be asleep again, but just in the doctors office this time, not at the hospital.   At this appointment we'll have a chance to ask more questions, and connect with the staff social worker who can help us co-ordinate the doctors, insurance and help arrange a counselor to stay on top of his mental health! We also have ins
Read more

June 24

First of all Connor is no longer in pain, mouth is cleared up, weaning off the meds (slowly to avoid withdrawal). But Connor has lost all patience. He's still sweet and kind and trying so hard, but he's back to having two modes.... Sleeping or puking. GI was brought in today to discuss nausea and suggested abdominal breathing and getting up and moving. I don't disagree that more meds are not necessarily the answer, they so far seem to put him to sleep, but if he stands, he pukes. (Not even entirely sure the nausea and vomiting are connected, the vomiting happens very suddenly and very violently.) Hard to walk around if you are puking. He is positive for C diff, another infection, so another antibiotic that once again has nausea as a side effect. Honestly don't know what makes him sick. Meds? Pseudocyst? Chemo? All of the above? Doctors don't know either. I begged the staff to do more, that this isn't any quality of life.... Hopefully they find something.
Read more