June 28

So my day started with a text from Connor at 7:30am that someone from surgery had stopped by (a med student apparently), and that the pseudocyst needs to be drained and they would call IR and put him on the schedule today, and then left. Connor was very confused, and a little distressed, because we don't want the drain to go in again if it's just going to keep filling.
In any case, we waited for the rest of the team to weigh in, I also requested they speak to surgery about their bedside manner with a minor.
The issue seems to be that the pancreas is still hurt. Essentially bruised, and time is the best healer. Unfortunately that doesn't work for us because the side effects are so debilitating to Connor right now.
They believe that the pancreas is still leaking and that's why it refilled. So GI has agreed to do another endoscopic procedure to look at the pancreas, hopefully find the leak and try to block it, encouraging it to seal. 
But because things are never easy, the pancreas is like a sponge, it's possible this procedure could cause another round of pancreatitis (it's still damaged) or it could spring a leak elsewhere and start another cyst.
Full surgery is a very last resort. It's not something that can be easily removed or suctioned, it likely takes multiple surgeries and would delay chemo to a very grave concern of the Leukemia growing back (in which case all would be for naught).
So he's on the schedule for tomorrow (actually surprisingly fast!). Hope we'll have some answers, pray they don't cause more damage, and this works to help him heal on his own. After that, they will need to put the external drain back in because it's still not going anywhere. 
They also couldn't have done this any sooner because the mouth sores (and throat) prevented an endoscopic procedure.
No answers or even speculation on what timeframe for discharge until he's out of the procedure.
Prayers that this goes well and he can get some relief.

Comments

  1. TraceyJune 28, 2021 at 12:45 PM

    Thank you for the update... praying for answers and relief for Connor 🙏🙏🙏

    ReplyDelete
  2. Nana PenJune 28, 2021 at 1:18 PM

    So hoping for better news but your care team is doing their best. At least we know more about the problems. It's hang in there time!🤞🙏❤

    ReplyDelete
  3. Dan and GailJune 28, 2021 at 7:58 PM

    We will offer up our most heartfelt hopes and prayers that the procedure goes well and provides some much needed relief for Connor so he can get back to feeling better. Thankfully they got him in quickly.

    ReplyDelete
  4. ScouseJune 28, 2021 at 8:42 PM

    Poor Connor .He’s been through so much. Thinking of all of you and sending 🙏🙏🙏🙏

    ReplyDelete
  5. KinlinFamilyJune 29, 2021 at 3:52 AM

    I am so sorry that any of you are going through any of this. 😢 Thinking of you and sending love, prayers, and hope that answers are right around the corner.🙏
    💕💕K/C/M/L

    ReplyDelete
  6. BeataJune 30, 2021 at 12:22 AM

    This is crazy that the communication went so poorly - not cool. That med student has a LONG way to go. And heartfelt prayers for Connor and hope that the surgery was helpful. I really hope he gets a break from all these complications as soon as possible. Sending love and prayers 🙏💕🙏💕🙏

    ReplyDelete

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