Mar 30

Back in the clinic yesterday.  Connor had two chemos and the leg shots.  (And they found a Tiana bandaid for Connor!) 
Last week went pretty well. Sunday night Connor's blood glucose spiked, and he took the long acting Lantis overnight to bring them down. They haven't gone back to normal yet, so he continues to test before every meal and two hours after. But has otherwise managed to stay off insulin with some diet control.
He starts steroids again in one week.
Leg shots continue Wed and Friday this week.  
Kirk got his 2nd shot on Saturday, uneventfully, thank goodness. No side effects for him at all.  A welcome change from the overwhelming side effects Connor gets to deal with daily! 
He takes at least three additional medications to counter the side effects of the steroids and leg shots.
Otherwise Connor's numbers are all looking good. His ANC is remaining high, hemoglobin and platelets are up, and the WBC is up (directly linked to steroids). He's been tired and having trouble concentrating though, so another fun side effect!
Still just taking things one day, one week, one phase at a time.


Comments

  1. Dan and GailMarch 30, 2021 at 5:11 PM

    Keep up the good work Team Connor. Sounds like you are being rewarded with some good numbers, but so sorry Connor also has to be conquering side-affects! :-( Love the band-aid theme!! They say laughter is the best medicine :-) D&G

    ReplyDelete
  2. Nana PenMarch 30, 2021 at 5:42 PM

    Such a challenging time for all of you. Connor suffers the side effects physically and mentally while you, Kirk and Kaylea feel it mentally. You have the right attitude of one day at a time! 🤞that numbers remain acceptable and that diabetes is kept at bay! Love to all💕🤗

    ReplyDelete
  3. BeataMarch 31, 2021 at 7:03 AM

    Hang in there Connor through this intensity! Every day is one step closer to moving to maintenance and cure. Really hope the side effects get better at some point. Love to you all

    ReplyDelete
  4. KinlinFamilyMarch 31, 2021 at 7:19 AM

    That sounded all very positive, expect for side effects - thank goodness for the Tiana bandaid to help with all of that ... I did have to look her up, so Connor is helping bring her fame up to true Disney Princess standards ... poor LeAnne didn’t get to know that one - and therefore we don’t have a closet of her dresses! :) Yay for Kirk! Will Kaylea be moved up the vaccination list? You are all amazing and inspire me every day. Thinking of you and sending hugs and naps ... just seems you might need to grab a nap every once and a while. 💕🍀K/C/M/L

    ReplyDelete

Post a Comment

Popular posts from this blog

April 21

Connor was so happy to be in his own bed last night. The overnight hydration was generally without incident. Some beeping, but not enough to keep anyone, including Connor, awake. He's keeping his blood sugar under control, but not off the insulin yet. He's not eating much, the chemo is making him pretty nauseous this round. Likely because he doesn't have much else in him. Even the smoothie failed him this morning. Hoping to entice him with some food today, he gets his port de-accessed so he can go home and have the longest shower he wants, and grabbing an additional prescription for anti-nausea that he alternate with the zofran as needed. Such is the life of someone fighting cancer.
Read more

Sept 28th - UPDATED 4:00pm

11:30am Heard quickly from the oncologist.  He is reaching out to the pathologist to get the final results to narrow down the diagnosis.  It will lead the way for the rest of the tests. He's going to call back with an appointment time for tomorrow so we can meet to coordinate and ask questions. I'll add more when I know more! 4:00PM - Spoke with Dr. Gregory (oncologist).  They still don't have a full diagnosis, they want to redo the blood work, because the low white blood cell count has some Leukemia indicators and that will change some of the treatments going forward.  In addition, tomorrow, they will be doing a Bone Marrow test and a Spinal Tap.  He will be asleep again, but just in the doctors office this time, not at the hospital.   At this appointment we'll have a chance to ask more questions, and connect with the staff social worker who can help us co-ordinate the doctors, insurance and help arrange a counselor to stay on top of his mental health! We also have ins
Read more

June 24

First of all Connor is no longer in pain, mouth is cleared up, weaning off the meds (slowly to avoid withdrawal). But Connor has lost all patience. He's still sweet and kind and trying so hard, but he's back to having two modes.... Sleeping or puking. GI was brought in today to discuss nausea and suggested abdominal breathing and getting up and moving. I don't disagree that more meds are not necessarily the answer, they so far seem to put him to sleep, but if he stands, he pukes. (Not even entirely sure the nausea and vomiting are connected, the vomiting happens very suddenly and very violently.) Hard to walk around if you are puking. He is positive for C diff, another infection, so another antibiotic that once again has nausea as a side effect. Honestly don't know what makes him sick. Meds? Pseudocyst? Chemo? All of the above? Doctors don't know either. I begged the staff to do more, that this isn't any quality of life.... Hopefully they find something.
Read more