June 18

So sorry for the late update. Lisa arrived safe and sound, and we are having a great time catching up! We got her a special pass to the hospital today (usually parents only) to see Connor and see where we spend so much of our lives right now.
Connor wasn't the easiest to visit. He's frustrated. His mouth still hurts even though it's better. His lips are so chapped and swollen they constantly bleed and peel. Obviously that's uncomfortable. He didn't really want to talk to anyone. 
He still hasn't eaten, so they continue to give him the TPN. We are trying to entice him, but he's lost interest in eating again. He's lost interest in pretty much everything, he would really like to be left alone. So he's actually acting like a fairly typical teenage boy. While I hate it, it's actually a pretty good sign!!
His blood work is finally starting to look good! His WBC's are in the normal range and his ANC is just below normal. It was a huge jump both last night and this morning! His mouth is starting to heal, and he will start to feel better soon too. 
He was off oxygen for most of the afternoon without setting off the alarm bells. His blood pressure was better too. He got out of bed with the physical therapist and walked down the hallway! 
All of this means he's improved enough to move back to the regular unit! 
They were supposed to move him this evening, and he's supposed to be back in room 10 (the suite!), But I don't have confirmation from Kirk yet about that.
It's highly unlikely he'll be home this weekend, but we are hoping to have a bit of freedom to wheel him outside on Sunday so we can have a quick visit with all five of us for Father's Day and my birthday.  I'm hoping the doctors and nurses allow us to try.
The heart monitor shows a few blips but nothing too concerning. I got the results after rounds so I'll confirm with the Drs in the morning. The endocrinologist checked in today and continues to monitor his blood sugars and insulin, but isn't concerned about this being a long term issue.
All in all very positive news!

Comments

  1. TraceyJune 19, 2021 at 12:02 PM

    Happy to hear of your Sister's safe arrival. Good news on Connor's continued improvement. He is still in my thoughts and prayers even all the way in FL ❤

    ReplyDelete
  2. BeataJune 19, 2021 at 9:14 PM

    Definitely moving in the right direction, with lots of family support, whether Connor likes it or not! And so happy to hear he walked down the hallway. Hope your visit goes really well tomorrow!!! 💕

    ReplyDelete
  3. KinlinFamilyJune 20, 2021 at 8:06 AM

    Wow - what an improvement - so awesome to hear! Also glad to hear your sister has arrived - enjoy some special sister time. 💕K/C/M/L

    ReplyDelete

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