June 16

Connor drank two teas last night, and seemed to keep them down. He did have another couple big d-sats (just a reminder, this is desaturated, meaning the amount of oxygen in his blood is low). It shouldn't go below 88%, and he's dropped as low as 80 a couple times. They put him on high-flow oxygen again, and then when he gets too pissed off they let him go back to the cannula. It drops more when he's sleeping. He keeps taking it off, and he got a nosebleed again today, I think because of the irritation. (It stopped fairly quickly, so yesterday's platelets helped!)
I think the doctors got the message that I was pissed off yesterday, because today I was invited to listen in on their rounds. Much more helpful to hear this, rather than 4 different doc coming in over the course of the day with virtually the same info.
His numbers are finally starting to come up. His WBC doubled from yesterday morning. Still far below what it should be, but on the way up. His ANC needs to be 550 to start treatment again (not for awhile), it went from 40 up to 90 today. Again, it has a long way to go, but finally headed in the right direction.
His blood glucose remains high and he's receiving insulin both long and short acting. Hopefully it'll end when his numbers come back up 🤞.
His platelets and hemoglobin both dropped, but not yet low enough for another transfusion thankfully.
Nausea seems better. He's still choking on mucus and spitting it up or suctioning it, but no longer actually vomiting.
The external drain is still only having minimal output, but the Drs want to wait for evaluation because the risk of infection is still to great to have it removed.
The internal drain needs to wait for his throat to feel better as it's an endoscopic procedure.
He is still getting random fevers, at least once a day up to 102. Still can't find the source of infection. Infectious disease wants ANOTHER CT scan, but are waiting to confirm that neither IR or GI want a scan as well. They will only do contrast by IV to look at the organs.
He's starting to get very frustrated, and when he d-sats and nurses rush in, his blood pressure and heart rate go up (understandable) but they are still keeping a close eye on both. 
So more positives today than most other days. He's more animated and wanting to talk even though his mouth is still too swollen to be understood. (Adding to his frustration!)
More waiting, trying to be patient.

Comments

  1. ScouseJune 16, 2021 at 12:30 PM

    🙏🙏🙏🙏

    ReplyDelete
  2. Nana PenJune 16, 2021 at 1:11 PM

    Oh finally some positive signs of recovery! My thoughts and prayers will be directed to the healing of his mouth and throat. So frustrating for him to not be understood although I am sure his body language tells you something! Glad you are getting more info Erin - not knowing is way too stressful! My love to all as the healing continues💕

    ReplyDelete
  3. KinlinFamilyJune 17, 2021 at 12:52 PM

    A much more encouraging report today – yay! Glad to hear the doctors have included you in their conversations – a better understanding for you, but also being able to hear the tone of their concerns would be reassuring. Keep the momentum rolling in the right direction! 🤞🍀🙏 💕K/C/M/L

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