June 12

Connor spiked another fever overnight last night. Infectious disease was called back in and they switched to two broad spectrum antibiotics, and we are continuing the micafungin. Connor continues to d-sat when he falls asleep (which is often!) so he's on a cannula still.
His sores are still terrible, and he has an incredible amount of mucus. He can't spit it up, there's too much, so he either throws up or now we have him using a suction (like the dentist) to help. He can't talk both because it hurts, and because of the mucus. He's practically choking on it.
He is getting TPN now, (IV nutrition), and PT tried to come by. Connor did manage to sit up in a chair, and the first thing he did is reach out for a hug❤️.
All of his numbers are terrible. ANC is 40 (to receive chemo treatment it has to be over 500), platelets went from 105 on day of admission, to 19 yesterday and only to 23 after two units transfused. He's getting another two units of platelets today, as well as two units of blood.
His Retic is low too, which means he's not making his own white blood cells right now. These low numbers mean severe neutropenia, and huge risk for infection. Hence the broad spectrum antibiotics.
His bilirubin is high, and he has a tinge of jaundice. His creatinine is holding steady, but no longer dropping.
He has stayed a bit more awake today, but that's about my only positive. 
He now has a port, a mid-line and two IV's to accommodate all his meds etc.
We are all exhausted.

Comments

  1. Nana PenJune 12, 2021 at 3:29 PM

    😭😭😭

    ReplyDelete
  2. Dan and GailJune 12, 2021 at 3:34 PM

    Erin, our hearts continue to go out to you, Connor and all the family. We are hoping and praying that Connor's body can respond to all this care. We want so much for him to get some relief while admiring his courage and your stamina. Sending hugs!

    ReplyDelete
  3. UnknownJune 12, 2021 at 6:01 PM

    Sending virtual hugs to you all. You are all in my thoughts and prayers. As I spend time with Maureen at work and read your blog, I am in awe of all your strength. Thinking of you all, all the time.

    ReplyDelete
  4. Lisa TubbsJune 12, 2021 at 9:53 PM

    I’m reading every word you send and continue to pray Connor and your family get some relief from this pain soon. I think of you all daily. Thank you for taking the time to update us!

    ReplyDelete
  5. KinlinFamilyJune 12, 2021 at 10:12 PM

    😢 My heart is with you all. Please keep up your own nutrition and sleep, so you stay strong for Connor. Lots of love 💕 K/C/M/L

    ReplyDelete
  6. Sue CraneJune 12, 2021 at 10:22 PM

    As with you and everyone else, we all wish there was something we could do to take away all this suffering. Praying for continued healing and strength. And please let us know if you need anything.

    ReplyDelete

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