June 10

Connor continues to look better on paper. His creatinine is down to 1.5, and his MTX dropped again to .22. (still toxic, but improving). But because he's been in bed, so drugged and not getting up, he is back in danger of clots, and all the fluid is causing some low lung volume so he's back on a cannula just to give him a break.
The mouth sores are still terrible, so he's on the continuous pain meds, which he says is helping a bit. He's still quite nauseous, so keeping those meds up as well. The combo has him sleeping a lot. He's not talking when he's awake much anyway.
Feeling frustrated for him that the nausea isn't going away. Waiting to hear from the surgeon to hear his opinion on whether or not the drain is contributing to the nausea. He was a bit late getting zofran while he waited for a procedure, and he managed to throw up all over the floor, and over the poor nurse's shoes! I wasn't allowed in the room or I would have had the bag to him with the first indication. (Well practiced now!)
Nothing else new, we continue to wait (somewhat impatiently) for his body to heal so we get back "our" Connor. He's still not himself.

Comments

  1. Nana PenJune 10, 2021 at 4:17 PM

    Being patient is hard on everyone! Especially the patient! We all want meds working and Connor feeling better.
    Erin, how you have overcome your puking weakness is amazing! I commend you, as I do on everything you do to look after Connor- things you probably never imagined you would have to do - you just do! Praying for relief and getting Connor back to being himself.💕

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  2. KinlinFamilyJune 11, 2021 at 7:01 AM

    I look forward to the improvement “on paper” to become “in person”. Patience is a difficult thing - you guys are doing amazing keeping your patience and frustration in check. Hoping all his sleeping will have “your Connor” back to you very soon. Love and hugs. 💕K/C/M/L

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  3. BeataJune 11, 2021 at 3:34 PM

    Such challenging bumps in this long road. I sure hope his nausea and toxicity improve in short order to help him feel better. My heart breaks for his challenges and I know how much you want to make it better. Patience is a practiced skill for you!!!!

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