May 31

Sorry I missed an update yesterday. Connor was feeling better, eating small meals, no fever. Nothing new to report. This morning he told the Dr.  he felt "Fine"! And the Dr immediately recommended discharge! It's been about two months since Connor felt "fine". Never thought I'd be happy to hear it!!
So we're on our way home, he'll take his AP test from home tomorrow, and back in the clinic on Thursday for chemo.
He had another CT this morning, we'll get results later this week. It was just a check to see how the cyst is draining. There is a chance the external drain can come out soon depending on the CT. Discharge has slowed to about 20ml a day.
The internal drain remains for at least 2-4 weeks.
He's staying on oral antibiotics, and IV anti-fungal for the time being.

Happy to be headed home, weather is supposed to warm up today, so we can salvage one day from the rainy long weekend!

Comments

  1. KinlinFamilyMay 31, 2021 at 1:29 PM

    “Fine” has become a cherished word! :) It has made my day to read this update! Enjoy this wonderful, warm, sunny day! ☀️💕K/C/M/L

    ReplyDelete
  2. BeataMay 31, 2021 at 8:42 PM

    I am so so so thankful to hear he is feeling fine and doing better enough for discharge!! This kid needs a good break from his complications!! Go Connor!! 💕😍

    ReplyDelete

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