April 9

We worked pretty hard yesterday to keep Connor awake, he probably only slept about two hours on and off throughout the day. Last night they increased the high flow air and gave him a sedative to relax him as he adjusted. He still didn't sleep much. Probably another couple of hours, but broken.
His Lipase is down to normal range and he didn't press his pain med button much, so for now we've turned it off. 
His creatinine remains normal, but they've decided to put off the CT still because his lungs and breathing are more important.
His lungs still aren't expanding and he's taking lots of really shallow breaths still, and it's taking all his energy.
The respiratory therapist came in and changed the machine to one with a full face mask that pushes more and stronger air into his lungs. They are continuing the sedative, and will increase it as needed.
He's still getting the diuretic as he still is taking in more than he's putting out.
The PICU Dr. finally confirmed what I suspected the other day, that the main concern wasn't really the pancreatitis, but rather sepsis. That's why they had 7 Drs and nurses around him, and why they rushed him to the PICU. They seem to have caught it early, but haven't had the opportunity to ask more questions yet. This explains his symptoms better than just pancreatitis, and I'm a bit frustrated they didn't name it before. 
In the meantime, hope this new respiratory machine helps, let's him rest, and let's his body heal. I suspect we'll be here a while yet.

Comments

  1. KinlinFamilyApril 9, 2021 at 2:04 PM

    Many positive things in your update to be happy about. And as you have frequently said, thank goodness The Valerie Centre is so good and on top of things, caught it early and Connor didn’t get into sepsis. Frustrating for you that they didn’t name it earlier, but perhaps they were trying to save you some worry until it was no longer a worry - taking care of the whole family. Sending love, prayers, and healing energy. 💕K/C/M/L

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