Feb 18

Finally got his MTX results (from last night) when I called this morning at 8am. It needed to be under .4, and it's .2 so all is good!!
Even though his hemoglobin came up, they want to push two units of blood, but they want to wait to give him the maximum hydration today to continue to expel the MTX. Hydration continues for full 72 hours.

They'll start transfusion at 4pm, and discharge him at 7. We're hopeful that means they'll leave by 8pm. (Even knowing hours ahead they never seem to be able to have paperwork ready!)

It's snowing with no signs of stopping, expecting around 8".  So for those who know me well, you know I'm home waiting anxiously, and Kirk is at the hospital so he can drive home safely!!
So glad that this one went on time, although it does mean they'll go back to a full strength dose the next time. (We were still on a 25% reduced dose again)
I expect we'll have the week off next week, with only a clinic visit Friday likely for blood work and COVID test, although they may decide to just do it the following Monday before admission. 
Fingers crossed the transfusions go without incident, and I'll update if anything changes. If not we're taking the week off again next week!!

Comments

  1. Nana PenFebruary 18, 2021 at 1:08 PM

    Good news on numbers and homecoming tonight. Unwelcome snow but know Kirk is an awesome driver. The wait is always the worst part! Your guys will be home tonight👍❤

    ReplyDelete
  2. BeataFebruary 18, 2021 at 7:07 PM

    Fingers and toes are all crossed for Connor!! Safe travels for the boys! Thinking of you today and always!

    ReplyDelete
  3. KinlinFamilyFebruary 18, 2021 at 8:40 PM

    All sounds very positive - so good to hear! 🤞🍀 I, too, do not like driving in the snow ❄️ - each year I vow it will be my last ... hoping to spend winters in warmer climates ☀️ ... so, wishing you safe travels this snowy evening. 💕K/C/M/L

    ReplyDelete

Post a Comment

Popular posts from this blog

April 21

Connor was so happy to be in his own bed last night. The overnight hydration was generally without incident. Some beeping, but not enough to keep anyone, including Connor, awake. He's keeping his blood sugar under control, but not off the insulin yet. He's not eating much, the chemo is making him pretty nauseous this round. Likely because he doesn't have much else in him. Even the smoothie failed him this morning. Hoping to entice him with some food today, he gets his port de-accessed so he can go home and have the longest shower he wants, and grabbing an additional prescription for anti-nausea that he alternate with the zofran as needed. Such is the life of someone fighting cancer.
Read more

Sept 28th - UPDATED 4:00pm

11:30am Heard quickly from the oncologist.  He is reaching out to the pathologist to get the final results to narrow down the diagnosis.  It will lead the way for the rest of the tests. He's going to call back with an appointment time for tomorrow so we can meet to coordinate and ask questions. I'll add more when I know more! 4:00PM - Spoke with Dr. Gregory (oncologist).  They still don't have a full diagnosis, they want to redo the blood work, because the low white blood cell count has some Leukemia indicators and that will change some of the treatments going forward.  In addition, tomorrow, they will be doing a Bone Marrow test and a Spinal Tap.  He will be asleep again, but just in the doctors office this time, not at the hospital.   At this appointment we'll have a chance to ask more questions, and connect with the staff social worker who can help us co-ordinate the doctors, insurance and help arrange a counselor to stay on top of his mental health! We also have ins
Read more

June 24

First of all Connor is no longer in pain, mouth is cleared up, weaning off the meds (slowly to avoid withdrawal). But Connor has lost all patience. He's still sweet and kind and trying so hard, but he's back to having two modes.... Sleeping or puking. GI was brought in today to discuss nausea and suggested abdominal breathing and getting up and moving. I don't disagree that more meds are not necessarily the answer, they so far seem to put him to sleep, but if he stands, he pukes. (Not even entirely sure the nausea and vomiting are connected, the vomiting happens very suddenly and very violently.) Hard to walk around if you are puking. He is positive for C diff, another infection, so another antibiotic that once again has nausea as a side effect. Honestly don't know what makes him sick. Meds? Pseudocyst? Chemo? All of the above? Doctors don't know either. I begged the staff to do more, that this isn't any quality of life.... Hopefully they find something.
Read more