Feb 15

Connor was admitted again for next round of high dose Methotrexate (MTX). Kirk took him today, and because of a pending ice storm, I didn't go visit this evening.
His numbers were good this morning, so they started with a spinal tap and dose of regular methotrexate. He's back in the same room he's had every time this round and they started the infusion at about 6pm. Before that they were hydrating and getting the pH in his urine corrected.
He was a bit nauseous this afternoon, but not too much. Hopefully they can keep it at bay.
They are keeping the dose at 75% and increased hydration again in hopes that this time he can clear it on time in the 48 hours (with discharge at 72 hours).
Fingers crossed!

Comments

  1. Nana PenFebruary 15, 2021 at 10:18 PM

    🤞🤞🤞!

    ReplyDelete
  2. KinlinFamilyFebruary 16, 2021 at 1:10 PM

    Fingers crossed for the 3rd round to be even better than the 2nd round! 🤞🍀 ... also hoping your ice storm misses you ❄️ 💕

    ReplyDelete

Post a Comment

Popular posts from this blog

April 21

Connor was so happy to be in his own bed last night. The overnight hydration was generally without incident. Some beeping, but not enough to keep anyone, including Connor, awake. He's keeping his blood sugar under control, but not off the insulin yet. He's not eating much, the chemo is making him pretty nauseous this round. Likely because he doesn't have much else in him. Even the smoothie failed him this morning. Hoping to entice him with some food today, he gets his port de-accessed so he can go home and have the longest shower he wants, and grabbing an additional prescription for anti-nausea that he alternate with the zofran as needed. Such is the life of someone fighting cancer.
Read more

Sept 28th - UPDATED 4:00pm

11:30am Heard quickly from the oncologist.  He is reaching out to the pathologist to get the final results to narrow down the diagnosis.  It will lead the way for the rest of the tests. He's going to call back with an appointment time for tomorrow so we can meet to coordinate and ask questions. I'll add more when I know more! 4:00PM - Spoke with Dr. Gregory (oncologist).  They still don't have a full diagnosis, they want to redo the blood work, because the low white blood cell count has some Leukemia indicators and that will change some of the treatments going forward.  In addition, tomorrow, they will be doing a Bone Marrow test and a Spinal Tap.  He will be asleep again, but just in the doctors office this time, not at the hospital.   At this appointment we'll have a chance to ask more questions, and connect with the staff social worker who can help us co-ordinate the doctors, insurance and help arrange a counselor to stay on top of his mental health! We also have ins
Read more

June 24

First of all Connor is no longer in pain, mouth is cleared up, weaning off the meds (slowly to avoid withdrawal). But Connor has lost all patience. He's still sweet and kind and trying so hard, but he's back to having two modes.... Sleeping or puking. GI was brought in today to discuss nausea and suggested abdominal breathing and getting up and moving. I don't disagree that more meds are not necessarily the answer, they so far seem to put him to sleep, but if he stands, he pukes. (Not even entirely sure the nausea and vomiting are connected, the vomiting happens very suddenly and very violently.) Hard to walk around if you are puking. He is positive for C diff, another infection, so another antibiotic that once again has nausea as a side effect. Honestly don't know what makes him sick. Meds? Pseudocyst? Chemo? All of the above? Doctors don't know either. I begged the staff to do more, that this isn't any quality of life.... Hopefully they find something.
Read more