Connor's 12hr MTX is 52, so lower than last two times. His creatinine dropped to 0.67 which is excellent! Kidneys are working well. Next blood draw is at noon, and I'll update when I know anything. They will check his hemoglobin again, but anticipate giving him blood before he is discharged, but continuing to hold off as long as he remains asymptomatic. He's feeling pretty nauseous today, so he's added Ativan to the zofran and the ear patch. We got a bit of a rundown on the next phase. (Still have one more admission in the phase we're on). It adds back the Prednisone, but only every other week. PEG asperagenase (so Connor will get the alternative again) and several more spinal taps. It's a two month phase, but this is where ANC numbers drop and patients have the most transfusions, so it can stretch out longer as they wait for his body to recover. Hopefully no admissions, but lots of clinic visits. Long couple of months ahead. The clinic is working with the hos...
Sorry to hear :-( Good luck on Monday 🙏💕🙏
ReplyDeleteA few more days of rest doesn't sound like a terrible idea.
ReplyDeleteDarn! Hope by Monday the number will be good enough to start on next phase. Thinking of all of you!
ReplyDeleteBummer. Relax and let the body rest and repair - Monday will come soon enough.💕 K/C/M/L
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