No sooner had I written my last post, and Connor spiked a fever and we spent the day at the ER. We're home, he's tired, but better. No idea why, so we'll continue to monitor him as the Tylenol wears off. They gave him a dose of antibiotics so hopefully that'll help. Nothing else really showing in his blood work, except that because his counts are down he's susceptible to infection, so we don't take it lightly.
Tonight is Connor's 18th night in the hospital this stay. He can't wait to be home. We are aiming for Monday now. They are going to work on reducing his TPN (IV nutrition) to only a 12 hr infusion. And lining up delivery of those meds, and more micafungin. Connor is scared that he'll be too much of a burden, and we're scared that he'll need more help than we can give him. But we want him home more than we are worried, and just being home has some healing properties! I spoke with the oncologist and the endocrinologist and we feel like we have a good plan. The GI Dr did apparently suggest we add Cyproheptadine to his many medications. It's often used as an appetite stimulant, but they want to try it to see if it helps keep things moving in his digestive tract. We'll see how it works. They forgot to order his Kytril last night, so he woke up puking early this morning, and was sleeping from the Ativan when I got there. When he woke he had some reflexology, tried...
Connor made it through 1/2 hour of physical therapy today. Some sitting leg exercises, a few arm exercises and a short walk around the living room before feeling nauseous. And he spiked a fever. He slept the rest of the morning hopefully to get some energy for tomorrow. The nephrologist called with a cancellation for tomorrow, so will see him in the afternoon, and a telehealth appointment with the GI at 5:30. Hoping for some answers!!
Hope the day is restful and uneventful!
ReplyDeleteHopefully the last night. This one has been a haul.
ReplyDeleteSo close!! Fingers crossed for tomorrow. 🤞💕K/C/M/L
ReplyDelete