Started the morning off with Connor in the ER. He woke about 5 am with upper GI pain. He took some tylenol, but it didn't help. We called the doc on call, but they don't recommend taking anything stronger without first doing blood work. So Kirk took him up, and his Lipase levels are very high. (Beginnings of pancreatitis again). So they green lighted him for more meds, but sent him home without giving him anything. So it was noon before he took an oxy. He tried to eat, we managed to play egg wars (Kaylea was the reigning champ, but I won the paralympics!), and he half-heartedly walked around looking for candy the easter bunny hid. And then went to bed. It helps a bit lying down, but sadly the oxy is barely taking the edge off the pain. He's counting down until he can take something more. We're back in the clinic tomorrow, so we'll see what they say about his pain then. I just hope he can get some sleep. Hope everyone has a happy Easter, we are zooming with both ...
First of all Connor is no longer in pain, mouth is cleared up, weaning off the meds (slowly to avoid withdrawal). But Connor has lost all patience. He's still sweet and kind and trying so hard, but he's back to having two modes.... Sleeping or puking. GI was brought in today to discuss nausea and suggested abdominal breathing and getting up and moving. I don't disagree that more meds are not necessarily the answer, they so far seem to put him to sleep, but if he stands, he pukes. (Not even entirely sure the nausea and vomiting are connected, the vomiting happens very suddenly and very violently.) Hard to walk around if you are puking. He is positive for C diff, another infection, so another antibiotic that once again has nausea as a side effect. Honestly don't know what makes him sick. Meds? Pseudocyst? Chemo? All of the above? Doctors don't know either. I begged the staff to do more, that this isn't any quality of life.... Hopefully they find something.
No sooner had I written my last post, and Connor spiked a fever and we spent the day at the ER. We're home, he's tired, but better. No idea why, so we'll continue to monitor him as the Tylenol wears off. They gave him a dose of antibiotics so hopefully that'll help. Nothing else really showing in his blood work, except that because his counts are down he's susceptible to infection, so we don't take it lightly.
Hope the day is restful and uneventful!
ReplyDeleteHopefully the last night. This one has been a haul.
ReplyDeleteSo close!! Fingers crossed for tomorrow. 🤞💕K/C/M/L
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