Jan 19

MTX is .19, creatinine is down to 1, all headed in the right direction.
Staying another night still, he'll get blood tomorrow.

Comments

  1. Nana PenJanuary 19, 2021 at 1:45 PM

    Hope the day is restful and uneventful!

    ReplyDelete
  2. Sue CraneJanuary 19, 2021 at 1:50 PM

    Hopefully the last night. This one has been a haul.

    ReplyDelete
  3. KinlinFamilyJanuary 19, 2021 at 2:36 PM

    So close!! Fingers crossed for tomorrow. 🤞💕K/C/M/L

    ReplyDelete

Post a Comment

Popular posts from this blog

June 19

Connor's count continue to trend up. They've stopped the neupegen that helps him make WBC'S because he seems to be managing it on his own. He had two more nosebleeds last night, so they transfused another unit of platelets early this morning. Connor said he didn't sleep well because of the nosebleeds. He's tired, and still grumpy.  PT came and got him walking again. He went down the hall, sat and rested, and then back. Then he sat in a chair for a while. Hry still won't eat. And won't drink much more than water or an apple juice. He says the pain is better, but he's still pressing the Dilaudid button pretty often, and not talking or eating. So he stays on the TPN and other IV supplements. They are starting treatment again Monday. He's already a week late. But they are going to skip methotrexate, and wait another 10 days for that one. He'll just get the Vincristine. Hopefully he'll eat something tomorrow so the chemo doesn't make him too n...
Read more

Feb. 17 Update 1

Connor's 12hr MTX is 52, so lower than last two times. His creatinine dropped to 0.67 which is excellent! Kidneys are working well. Next blood draw is at noon, and I'll update when I know anything. They will check his hemoglobin again, but anticipate giving him blood before he is discharged, but continuing to hold off as long as he remains asymptomatic. He's feeling pretty nauseous today, so he's added Ativan to the zofran and the ear patch.   We got a bit of a rundown on the next phase. (Still have one more admission in the phase we're on). It adds back the Prednisone, but only every other week. PEG asperagenase (so Connor will get the alternative again) and several more spinal taps. It's a two month phase, but this is where ANC numbers drop and patients have the most transfusions, so it can stretch out longer as they wait for his body to recover. Hopefully no admissions, but lots of clinic visits. Long couple of months ahead. The clinic is working with the hos...
Read more

January 14

Connor was still feeling pretty nauseous this morning so they added Ativan to his zofran, and he went right back to sleep. They doubled the amount of Leucovorin today to help excrete the MTX. Number is down to 2.3, but needs to below 0.1 before he can go home. The doctor is doubting he'll be discharged before Monday at this point.  He did mention that just because he reacted this way this time, doesn't mean he'll react this way next time. Hopefully it gets easier because otherwise the next 3 treatments are going to take forever!! He finally ate some broth for lunch today and still feels okay. First meal since breakfast yesterday. He's resting a lot and keeping up the fluids.
Read more