Jan 18

A full week. MTX is still .27, his creatinine has come down again to 110, so the kidneys seem do be doing okay, just slow.
Because he's still here another day or two they've put off giving him blood today. They'll try tomorrow. Just gives his body a break. 
He let me beat him several times at crib and we're pretty even at UNO. Still sick of these 4 walls though! 

As it has been a week, they have to de-access the port today, so he got 30 minutes without tubes.  He got a shower and we walked around the outside of the hospital, without pushing a pole.  Sunny today and above freezing, so nice to get out.  He's tired now though.

Unfortunately the nurses struggled to get his port re-accessed.  And 30 minutes isn't enough time to get the numbing cream to work - he's being incredibly patient and gritting his teeth while he's in pain.  He's so incredibly brave.  I'm typing and trying not to tell them to get away and stop hurting my boy!!

Our frustration level with being admitted goes up exponentially the longer we are here - unfortunately it is still the best place for him to heal.



Comments

  1. KinlinFamilyJanuary 18, 2021 at 5:17 PM

    Your patience is incredible, as is your strength ... holding back your inner mama bear, while the nurse works. Thank goodness for showers, fresh air, and walks - keeps us all on “this” side of sanity. 💕 K/C/M/L

    ReplyDelete
  2. UnknownJanuary 20, 2021 at 2:20 PM

    I feel your pain mama.

    ReplyDelete

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