Jan 11, 2021

Connor's ANC is back up to 820 (needed to be over 750) so we've officially started the 3rd phase of treatment. He had a spinal tap injection this morning, and they have been dripping liquids into him all day. We've walked across the hallway and been admitted. Here is his home for the next few days.

 Once his urine pH returns to normal they'll start the high dose Methotrexate. It drips over 24 hours, and them they test his blood at 24 hours (once it's done), 42 hours and 48 hours. If the goals are met at each stage then he can go home after 72 hours. If the goals aren't met his stay may lengthen.  He also starts Leucovorin at hour 42. 

This is the "Bible" for the next few days. 
Kirk is coming in this evening to spend a few hours and watch some shows with Connor. 
He's feeling good and in good spirits right now. 

Comments

  1. Nana PenJanuary 11, 2021 at 6:06 PM

    I am glad that the next phase has started. Not a bad setup for a hospital room. Looks like you or Kirk could stretch out as needed. Hope all goes well so that he can get home soon. Love to all!❤

    ReplyDelete
  2. KinlinFamilyJanuary 12, 2021 at 4:33 PM

    Yay for the start of Phase 3. Not bad digs for a hospital room. Very complicated and confusing, but my overall understanding is things are moving in a positive direction - excellent! Love and support for all you are going through. I bet the men watch terrible shows like “Battlebots” and some crazy living, in some crazy conditions? Enjoy them! :) Lots of love, K/C/M/L

    ReplyDelete

Post a Comment

Popular posts from this blog

April 21

Connor was so happy to be in his own bed last night. The overnight hydration was generally without incident. Some beeping, but not enough to keep anyone, including Connor, awake. He's keeping his blood sugar under control, but not off the insulin yet. He's not eating much, the chemo is making him pretty nauseous this round. Likely because he doesn't have much else in him. Even the smoothie failed him this morning. Hoping to entice him with some food today, he gets his port de-accessed so he can go home and have the longest shower he wants, and grabbing an additional prescription for anti-nausea that he alternate with the zofran as needed. Such is the life of someone fighting cancer.
Read more

Sept 28th - UPDATED 4:00pm

11:30am Heard quickly from the oncologist.  He is reaching out to the pathologist to get the final results to narrow down the diagnosis.  It will lead the way for the rest of the tests. He's going to call back with an appointment time for tomorrow so we can meet to coordinate and ask questions. I'll add more when I know more! 4:00PM - Spoke with Dr. Gregory (oncologist).  They still don't have a full diagnosis, they want to redo the blood work, because the low white blood cell count has some Leukemia indicators and that will change some of the treatments going forward.  In addition, tomorrow, they will be doing a Bone Marrow test and a Spinal Tap.  He will be asleep again, but just in the doctors office this time, not at the hospital.   At this appointment we'll have a chance to ask more questions, and connect with the staff social worker who can help us co-ordinate the doctors, insurance and help arrange a counselor to stay on top of his mental health! We also have ins
Read more

June 24

First of all Connor is no longer in pain, mouth is cleared up, weaning off the meds (slowly to avoid withdrawal). But Connor has lost all patience. He's still sweet and kind and trying so hard, but he's back to having two modes.... Sleeping or puking. GI was brought in today to discuss nausea and suggested abdominal breathing and getting up and moving. I don't disagree that more meds are not necessarily the answer, they so far seem to put him to sleep, but if he stands, he pukes. (Not even entirely sure the nausea and vomiting are connected, the vomiting happens very suddenly and very violently.) Hard to walk around if you are puking. He is positive for C diff, another infection, so another antibiotic that once again has nausea as a side effect. Honestly don't know what makes him sick. Meds? Pseudocyst? Chemo? All of the above? Doctors don't know either. I begged the staff to do more, that this isn't any quality of life.... Hopefully they find something.
Read more