Dec 7

Great news! Connor has surprised everyone and his numbers have bounced right back up again! Which means his body is fighting hard and working on being healthy.  

We'll start the next round of this phase tomorrow. It's similar to last round, without the spinal taps.  Tomorrow is a hydration day, which means we're at the clinic for a long day, with overnight hydration again.  Then here every day for the one chemo that just gets pushed in, so should be in and out in 45 minutes.

For anyone keeping track from this past phase, it does unfortunately have him getting the PEG alternative in two weeks, 6 more times, including Christmas and New Years Day. Because the clinic is closed on those days, he'll do a short-term admit at the Children's hospital. So it'll mean several hours in the hospital both those days. 

We will likely plan to push our Christmas up, celebrating Christmas Eve on the 23rd and open presents on the 24th!! After all, it's just a date on the calendar!!

Speaking of Christmas, here is a picture of "George" (Kaylea named our tree this year, right before we "killed" him by chopping him down!)

Comments

  1. So glad that Connor’s body is fighting so hard!!! He really is amazing as you all are with your adapting to and meeting each challenge. You are really wonderful role models about how to do this well 😍

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  2. And that is how I know you're all part of my family. Joking about killing the tree is one thing, but naming it to make it personal is the next level.

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  3. George is beautiful! Well done Kaylea! 🎄. You are right, Christmas is just a date, so celebrate early and perhaps Christmas magic will carry on into the treatments and they will be super easy and tolerated well! 🤞☘️ Very happy to hear Connor’s body has charged back and is fighting hard - makes for a wonderful evening! Enjoy. Lots of love, K/C/M/L 💕

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  4. I like George! He died for a good cause! Inventive tree top Kaylea! Wonderful news about Connor being able to get to next phase and yes, Christmas is a day/date - it is the love shared with your family that makes any day a special one! Great work McDermids! Fantastic family team with Connor getting special mention! ❤💕🤗

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