Dec 2

Monday went well, sorry I didn't update. His Hemoglobin came up and he only needed one unit of blood. He got his last spinal tap in this phase, and the new shots seem to be going okay.
Last night Connor was extra tired and had no appetite (very unusual for Connor, but not for a chemo patient!). He tried to eat some oatmeal this morning, but still wasn't interested in food.
Today his blood sugar is up again, so we need to test his blood for the next 24 hrs, and if it doesn't come down we head back to the Endocrinologist. (Or at least check in with her!)
His Bilirubin is also elevated, so they are keeping an eye on it, but other liver function tests seem okay right now.
His white cell count is down to 1.31, down from 2.2 on Monday. His ANC is down to .38, and needs to be .7 to start the next phase on Monday.
So his numbers aren't looking great, but they are totally expected, and not especially concerning.
While I'm not interested in delaying treatment, I am not unhappy that he may wait a week before the next phase can begin.  Not sure how often we'll need to come in to watch his numbers while we wait though.
So lots of things are up in the air! We'll be back on Friday, but it's unclear if we'll have answers or not.
In the meantime Kaylea and I decorated the house for Christmas yesterday, sang along to the Christmas music 🎵 and got into the spirit of the holidays!
Planning on getting our tree tomorrow, hopefully Connor feels up to helping us pick it out!

Comments

  1. BeataDecember 2, 2020 at 2:27 PM

    Good luck with the numbers and I sure hope Connor’s appetite is back soon for the amazing goodies you typically prepare for the holiday season! Hugs all around 🤗

    ReplyDelete
  2. Nana PenDecember 2, 2020 at 2:39 PM

    Hoping the numbers stay in acceptable range and that Connor gets his appetite back. Down days are hard! The Christmas music is a must when decorating- glad you and Kaylea shared that. Fingers crossed 🤞that Connor will want to help pick out a tree and thst you get that fresh evergreen smell wafting thru your home🎄🤗💕

    ReplyDelete
  3. KinlinFamilyDecember 2, 2020 at 2:57 PM

    Sorry to hear numbers are not where you wished them to be - however, grateful this is not uncommon. Happy to hear the Christmas spirit lives on in the decorating, singing, and getting of the tree 🌲 - long live the spirit and miracles 💫 of the Christmas season. Lots of Love, 💕K/C/M/L

    ReplyDelete

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