May 29

Connor is feeling better today. Less nauseous, and actually ate some food for lunch. He's only taken a couple anti-nausea pills all day. He had another nose bleed, but otherwise he's doing very well. 
The surgeon wants another CT tomorrow or Monday, so just waiting to hear about that.
We've been told that he has to continue the anti-fungal for the rest of his chemo treatments. (~18 months). He has to continue with the IV one for the next two months while he's getting Vincristine, as it counteracts with the oral anti-fungal. We did get a negative fungal test, and they can't actually find a fungal infection, but if they stop meds, it could regrow. Super frustrating, as he has to remain accessed as we head into summer. 
Not much else going on. The surgeon stopped by early this morning and talked to Connor but we haven't talked to him, and if he told Connor more details, he can't remember them.
I'm glad he's feeling better.

Comments

  1. Very happy to hear Connor is feeling a little better and was able to eat something. The corner has been turned! 💕K/C/M/L

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