May 15 The Big Climb!

A beautiful day for our fundraiser for Leukemia and Lymphoma Society today. Three friends, Kaylea, and one of her friends joined us in person to climb our 1,311 steps (plus a bonus 9!). Our team raised $2421.25!!! Thank you to all our friends and family who participated, shared, and donated. It takes a village, and mine is the very best!! It spans 3 countries and 2 continents!!

Connor is definitely starting to feel better! He still can't let his stomach get empty, but he's actually eating a real meal, and not just rice!!  The rash is itchy, the port is sore, anything using his abs hurts, but he joined us for dinner last night and we had him laughing so hard he was crying (probably in painπŸ™„), but still good to see him start living again.
His fungal test is still coming back positive, so he's on the IV antifungal for awhile still. The drain stays in until he's draining less that 10ml a day for three days. He's dropped considerably to 100ml a day for a total of 1,850 ml now. 
Back in the clinic on Monday for blood work, and if his numbers are good, we'll start the next phase on Thursday.

Comments

  1. Well done fundraisers!! What an appropriate challenge for the battle you are in, it certainly has been an uphill climb. Hopefully with Connor feeling a bit better, it will get easier. So happy the weather delivered for the day!! 🌞🌞🌞

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  2. Congrats to all! I like to think that Connor is channeling all the energy from those who stepped up (and down), walked or ran, towards his healing. So happy to hear that he is feeling better today!! 🚢‍♀️🚢‍♂️πŸƒ‍♂️πŸƒ‍♀️πŸ‘πŸ‘πŸŒžπŸ’•

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  3. Well done ladies! I climbed with you here in Canada - we also had a beautiful day! So happy to hear Connor had a good laugh and a bit of food. Things are looking up! :) Hope everyone has a good night sleep tonight from the stairs and fresh air. πŸ’•K/C/M/L

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