Dec 16

Long day yesterday! After a great weekend of "normal" Connor needed two units of blood yesterday. Unfortunately the blood bank took forever to type and match (no, his blood type doesn't change, but they are required to type and match each time!) So they didn't start the three hour infusion until after 2pm (we got to the clinic at 10:30am). 
We didn't want to do one of the units today because the Northeast is under a snow storm warning. We are expecting anywhere from 12"-24" in the next 30 hours. Kirk is taking Connor today for a hopefully quick appointment before the storm starts, and back again Thursday later in the afternoon, hopefully after it ends!! They won't take blood and run numbers again until Friday. 
His pancreas enzymes were back in normal range (likely why he was feeling better) so hopefully it won't kick back up again when he starts asparaginase again next week. 
Hopefully the only event this week will be the snow and the controversy between having snow days vs. virtual school😂🤣❄️🥶🌬️

Comments

  1. Nana PenDecember 16, 2020 at 10:58 AM

    As always Erin, you manage to find a bit of ironic humour - snow day/virtual school! At least the long day was not today. I am 🙏 for uneventful for the rest of the week regarding treatment. Watch your back as your that shovel!🌨☃️ Take care out there!❤

    ReplyDelete
  2. KinlinFamilyDecember 16, 2020 at 5:51 PM

    To begin - how is this a debate? Snow days are what all kids (and teachers) pray for even in the Fall and Spring. Snow days are far superior to virtual days! More importantly - you have endless patience and perseverance - red tape, protocol, and bureaucracy - you can’t fight it, so continue to breath through it. Think of the prize at the end - you are amazing! Keep chugging! Keep safe out there - blasted snow! ❄️ Ugh! Lots of Love, K/C/M/L

    ReplyDelete
    Replies
    1. Erin McDermidDecember 17, 2020 at 6:11 AM

      Because school is now capable of remote learning some schools are not closed despite the forecast, but instead they would only close if there were widespread power outages! Hotly contested, because if ever we needed a day to play in the snow, it's 2020!!

      Delete
  3. BeataDecember 16, 2020 at 7:35 PM

    You are always so proactive - good to get everything done while you can! Good luck with all the snow & enjoy the beautiful landscape!

    ReplyDelete
  4. Auntie LisaDecember 21, 2020 at 7:42 PM

    This post last week reminded me I hadn’t donated blood for a while. I got a last minute appointment for Friday. Thought of Connor while I donated ❤️ Aunty Lisa

    ReplyDelete
    Replies
    1. Erin McDermidDecember 23, 2020 at 6:06 AM

      Thank you for your donation 🧡! Neither Kirk or I can donate, and I asked about direct donations if the blood bank gets low but they won't accept from parents of leukemia patients in case a transplant I'd needed. I guess a blood donation would rule out using our bone marrow. So thank you!!

      Delete

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