Nov.9 Consolidation Phase day 1

 Got to the Valerie Center at 8:30am this morning.  We did get insurance approval for home care, so Connor will come home tonight (Yay!) with an IV to keep his hydration levels up. 

We will be here 4 days a week (mon-thurs) for the next two weeks.  I'm still waiting for the official calendar for the following two weeks, and the subsequent four weeks after that.  There is a potential gap between the two 4 week sections if the blood counts are too low during the treatment.  

This is one of the most intensive phases - even though the cancer is in remission, without the treatment it would immediately start growing again.  This 28 month regime has been tested and continues to be tested and has the best long term results.  So 27 months to go.  I can hardly believe it's only been a month!

Connor's numbers continue to look good.  The doctors are pleased with how high his blood cell counts continue to be.  We may have a blood sugar concern around day 14 and day 29 of this phase, but we should be able to stay on top of it because he's not on the prednisone as well.

Spinal tap is complete for the day - every Monday for the next 4 weeks.  Just waiting for him to wake and they can start hydrating him.

Chemo and Zoom!

Comments

  1. Nana PenNovember 9, 2020 at 11:43 AM

    Ok the long haul starts now. How reassuring it is to know that this is a proven program, with success at the end. The first month was successful and the next will be too. And the next. Love to all! You got this!💕

    ReplyDelete
  2. GillianNovember 9, 2020 at 2:01 PM

    That's great about the home care - I'm sure he will be happy to be in his own bed and all of you will be happy to have him home each night as well. XOXO

    ReplyDelete
  3. UnknownNovember 9, 2020 at 2:12 PM

    Good news about the home care approval! LY Karen & Ronnie

    ReplyDelete
  4. KinlinFamilyNovember 9, 2020 at 3:37 PM

    Great news about the home care! This does sound very intense, but excellent to be starting with good numbers. We will send love and healing vibes every day!! 💕 K/C/M/L

    ReplyDelete
  5. BeataNovember 9, 2020 at 8:07 PM

    Wow, thank God the doctors know so much about what works! Stay strong through the long haul. Great news about his numbers. Warmest wishes to you all ❤

    ReplyDelete
  6. Dan and GailNovember 10, 2020 at 12:50 AM

    What a brave young man, you must be so proud of him! Take care all and know we are thinking of you as you continue on this journey together. D&G

    ReplyDelete

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