Oct 30, 2020

Day 29.... We are checked in at the Valerie Center awaiting Connor's procedure. It's suddenly like a ghost town here!
The nurses are actually all wearing headband ears for Halloween, it is a pediatric unit after all!
Rainy here in Morristown, but it was snowing in Randolph when we left this morning. 
Nothing can dampen my spirits today. I know that the bone marrow today will show a MRD of less than 0.01, I just have to wait until Tuesday to verify! 
Connor takes his last dose of Prednisone tonight and can reduce the insulin tomorrow to only once a day... So many positives!!!
If everyone can send good thoughts and prayers I know we will get the outcome we want!!

Comments

  1. Dan and GailOctober 30, 2020 at 1:06 PM

    Sending our bestess good outcome thoughts your way. Good luck, hope all goes smoothly for Connor!

    ReplyDelete
  2. UnknownOctober 30, 2020 at 1:08 PM

    Good thoughts for good outcome today!! LY guys!! K&R

    ReplyDelete
  3. BeataOctober 30, 2020 at 2:04 PM

    Sending all of our best thoughts and prayers to Connor for the optimal numbers he is awaiting! 🙏💪🙏

    ReplyDelete
  4. Nana PenOctober 30, 2020 at 2:17 PM

    Connor has been foremost in my mind all morning. It is midafternoon for you now so hopefully Connor has had some lunch! Also praying for those great results on Tues. Sending our love to all! Happy Halloween 🎃

    ReplyDelete
  5. LindaOctober 30, 2020 at 4:24 PM

    Sending SO MUCH LOVE and good thoughts for Tuesday!!!!!

    ReplyDelete
  6. KinlinFamilyOctober 30, 2020 at 8:32 PM

    What wonderful positivity to start this Hallowe’en weekend! 🎃 👻 Have a great weekend and I look forward to your fantastic news on Tuesday! 💕☘️🤞 K/C/M/L

    ReplyDelete

Post a Comment

Popular posts from this blog

April 21

Connor was so happy to be in his own bed last night. The overnight hydration was generally without incident. Some beeping, but not enough to keep anyone, including Connor, awake. He's keeping his blood sugar under control, but not off the insulin yet. He's not eating much, the chemo is making him pretty nauseous this round. Likely because he doesn't have much else in him. Even the smoothie failed him this morning. Hoping to entice him with some food today, he gets his port de-accessed so he can go home and have the longest shower he wants, and grabbing an additional prescription for anti-nausea that he alternate with the zofran as needed. Such is the life of someone fighting cancer.
Read more

Sept 28th - UPDATED 4:00pm

11:30am Heard quickly from the oncologist.  He is reaching out to the pathologist to get the final results to narrow down the diagnosis.  It will lead the way for the rest of the tests. He's going to call back with an appointment time for tomorrow so we can meet to coordinate and ask questions. I'll add more when I know more! 4:00PM - Spoke with Dr. Gregory (oncologist).  They still don't have a full diagnosis, they want to redo the blood work, because the low white blood cell count has some Leukemia indicators and that will change some of the treatments going forward.  In addition, tomorrow, they will be doing a Bone Marrow test and a Spinal Tap.  He will be asleep again, but just in the doctors office this time, not at the hospital.   At this appointment we'll have a chance to ask more questions, and connect with the staff social worker who can help us co-ordinate the doctors, insurance and help arrange a counselor to stay on top of his mental health! We also have ins
Read more

June 24

First of all Connor is no longer in pain, mouth is cleared up, weaning off the meds (slowly to avoid withdrawal). But Connor has lost all patience. He's still sweet and kind and trying so hard, but he's back to having two modes.... Sleeping or puking. GI was brought in today to discuss nausea and suggested abdominal breathing and getting up and moving. I don't disagree that more meds are not necessarily the answer, they so far seem to put him to sleep, but if he stands, he pukes. (Not even entirely sure the nausea and vomiting are connected, the vomiting happens very suddenly and very violently.) Hard to walk around if you are puking. He is positive for C diff, another infection, so another antibiotic that once again has nausea as a side effect. Honestly don't know what makes him sick. Meds? Pseudocyst? Chemo? All of the above? Doctors don't know either. I begged the staff to do more, that this isn't any quality of life.... Hopefully they find something.
Read more