Oct 1, 2020

 Lots going on this morning.  Connor was scheduled for a PET scan and a CT of the abdomen so he's been on a restricted diet and already starting to drink contrast.  They've scheduled ANOTHER COVID test so that he can have surgery again tomorrow to put the central line port in.

Dr. Gregory called this morning and with the results of the bone marrow they are changing the diagnosis to ALL or Acute Lymphoblastic Leukemia.  Remember it's a spectrum between the two.  Here's the information I have been given.  (I read what they give me, and not google right now, it's safer for my mental health!)

ALL is a cancer involving the blood-forming cells that normally make a type of white blood cell called lymphocyte. ALL starts when a single young blood-forming cell, called a lymphoblast, develops a series of mistakes or mutations that transforms the it into a leukemia cell.  The leukemia cell multiplies uncontrollably, crowding out healthy cells in the bone marrow.  The leukemia cells can also spill to into the bloodstream, and spread to the lymph nodes, spleen, liver and other organs.  

Connor has precurser-B cell ALL.  ALL is the most common type of childhood cancer.

So - given this they have chosen to forgo the PET scan today and instead we're meeting the doctor to advance Connor into the study they talked about the other day.   

We still have the 2nd COVID test and then we're scheduled for the surgery for the central line tomorrow morning and then he'll be admitted to the hospital and begin treatment.

I don't know yet what that looks like, so I'll update after we get more info!

Comments

  1. Audrey MaOctober 1, 2020 at 12:58 PM

    Is Dr. Gregory involved with the study at all? Good luck with the meeting this afternoon.

    ReplyDelete
    Replies
    1. Erin McDermidOctober 3, 2020 at 9:05 PM

      The study is through a consortium, it's called Project Every Child. They have a fairly detailed website if you Google it

      Delete
  2. KinlinFamilyOctober 1, 2020 at 1:38 PM

    Glad for the update. My knowledge is very limited. Sounds like a very big hill, but with a very big reward at the top! ... if I understand properly. Thinking and praying for all of you. Keep breathing! Lots of love, 💕K/C/M/L

    ReplyDelete
  3. UnknownOctober 1, 2020 at 4:43 PM

    Thank you for your updates. Your family will be in my prayers.

    ReplyDelete
  4. Katie dSPOctober 1, 2020 at 8:49 PM

    This comment has been removed by the author.

    ReplyDelete
  5. Katie dSPOctober 1, 2020 at 8:55 PM

    Thinking of you all. I appreciate you updating and hope that the surgery is quick and easy for him.

    ReplyDelete
  6. KimOctober 1, 2020 at 9:03 PM

    Our thoughts and prayers are with you, especially praying for strength and support at just the right times. Please know you are never alone and we will be here when u need anything xoxo so glad u keep us posted

    ReplyDelete

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