Sept 30, 2020

Fairly quiet day finally. Still waiting on results of the bone marrow test.
Here is Connor getting an echocardiogram, if only all it took was a quick jumpstart!!!

Comments

  1. GillianSeptember 30, 2020 at 3:29 PM

    Was wondering why he was getting this test - is it to help inform what type of chemo/treatment approach to take?

    ReplyDelete
    Replies
    1. Erin McDermidSeptember 30, 2020 at 5:00 PM

      The echo was to confirm nothing around the heart, I believe and to get a baseline before starting treatment to make sure it doesn't get effected.

      Delete

Post a Comment

Popular posts from this blog

Feb. 17 Update 1

Connor's 12hr MTX is 52, so lower than last two times. His creatinine dropped to 0.67 which is excellent! Kidneys are working well. Next blood draw is at noon, and I'll update when I know anything. They will check his hemoglobin again, but anticipate giving him blood before he is discharged, but continuing to hold off as long as he remains asymptomatic. He's feeling pretty nauseous today, so he's added Ativan to the zofran and the ear patch.   We got a bit of a rundown on the next phase. (Still have one more admission in the phase we're on). It adds back the Prednisone, but only every other week. PEG asperagenase (so Connor will get the alternative again) and several more spinal taps. It's a two month phase, but this is where ANC numbers drop and patients have the most transfusions, so it can stretch out longer as they wait for his body to recover. Hopefully no admissions, but lots of clinic visits. Long couple of months ahead. The clinic is working with the hos...
Read more

January 14

Connor was still feeling pretty nauseous this morning so they added Ativan to his zofran, and he went right back to sleep. They doubled the amount of Leucovorin today to help excrete the MTX. Number is down to 2.3, but needs to below 0.1 before he can go home. The doctor is doubting he'll be discharged before Monday at this point.  He did mention that just because he reacted this way this time, doesn't mean he'll react this way next time. Hopefully it gets easier because otherwise the next 3 treatments are going to take forever!! He finally ate some broth for lunch today and still feels okay. First meal since breakfast yesterday. He's resting a lot and keeping up the fluids.
Read more

Dec 19

Image
We made it to the clinic despite the snow (we didn't get nearly as much as they were forecasting!) Thursday was quiet, but everyone rescheduled for Friday. Connor had to be there both days! Friday was so busy we never got to a chair! They kept us in the intake room, and out of the way.  Luckily his blood work was okay, so after a couple hours wait, we got the injection he needed and headed out.   Next week is back to the asperagenase leg shots on Monday, Wednesday, and Friday. Hopefully it won't exasperate the pancreatitis again.  In the meantime Connor is tired in the evenings, but otherwise feeling good.  This is him Friday in the intake room, on a meeting with a teacher. Working wherever he needs to!
Read more